tag:blogger.com,1999:blog-4653866575578444575.post5325754499990224441..comments2023-11-02T06:06:19.491-07:00Comments on Evan's Story: How Life is MeasuredErichttp://www.blogger.com/profile/02801459755173959530noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-4653866575578444575.post-711323033981451342010-12-06T08:28:51.280-08:002010-12-06T08:28:51.280-08:00My husband and I received the dreaded lethal diagn...My husband and I received the dreaded lethal diagnosis you are speaking of... unfortunately. In August, we were given the news at our level 2 ultrasound that our little girl had lethal skeletal dysplasia. We went to the best genetic specialists in the state and they confirmed the news. While looking at her tiny body, it was pretty obvious that what they were seeing was a little girl who would not make it. Worst day of my life. :( After testing, they still couldn't figure out which form it was because the mutated gene could not be found. It's refreshing to know that not all parents had to go through what we did. It was horrifying news that no one should ever have to hear. Congrats on your beautiful baby.Paizley'sMomhttps://www.blogger.com/profile/06271317341325585981noreply@blogger.comtag:blogger.com,1999:blog-4653866575578444575.post-25948643628081440222009-04-27T12:53:00.000-07:002009-04-27T12:53:00.000-07:00Great words! I wanted to say hello to Evan and the...Great words! I wanted to say hello to Evan and the family from Amelia. She is 3 months now and has achondroplasia. I enjoy your blog and admire your strength, positive attitude. Great writing too. I send my prayers and good energy!<br />KasiaKasia and Ameliahttps://www.blogger.com/profile/05647040314016302059noreply@blogger.comtag:blogger.com,1999:blog-4653866575578444575.post-47769175158403438552009-04-22T12:24:00.000-07:002009-04-22T12:24:00.000-07:00Amen to that! Now that I have a minute to sit bac...Amen to that! Now that I have a minute to sit back and realize what we went through, I am angrier than ever. How could you ever difinitively diagnose lethal skeletal dysplaisa with NO HOPE #1 - on a child the size of a hand, #2 - inside someone's womb and #3 - when there are so many cases of misdiagnosis! So glad you wrote me! I wish we lived closer!<br />Catherine WrightCatherine Merciez Wrighthttps://www.blogger.com/profile/11194313927562037426noreply@blogger.com